The Latest – October Edition

Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition

CT results & upcoming travel

I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel

The Not Knowing

I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing

News: The Doxil is Working

My recent blood work has shown a decline in my CA-125 test (nearly 50% down from the previous test). This means the treatment I'm on is working and I don't need to add anything else at this time. We'll test again in a month and go from there. *small optimistic happy dance* *but still not … Continue reading News: The Doxil is Working

The gray area that I didn’t know existed

My appointment with my oncologist was moved to Wednesday and I didn't tell anyone (except Kenji) and for that I'm low-key grateful. The appointment left me in unfamiliar territory, something I was not expecting, nor really prepared for. By the way, before I get on with it, can we just laugh for a moment about … Continue reading The gray area that I didn’t know existed

The rollercoaster

The below post was written the day I received some not-so-great news in early February. I've been sitting on this news, sharing only with a few and as the weeks have passed, sharing more in person with what's on the horizon, which essentially is a giant bag of shitty unknowns. I told myself I didn't … Continue reading The rollercoaster

Keto Life: Week 3 (and then some)

Let's start with some administrative items: November's blood work & oncologist call occurred without incident. All blood marker levels are within in the normal range -- my CA-125 was slightly elevated, but my HE-4 was down a significant amount. (No, I cannot thank the diet for that yet since the tests were done about 4 … Continue reading Keto Life: Week 3 (and then some)

Shingle all the way

The holiday season is upon us! Just kidding. Sort of. (I'm sure Costco will have their Xmas display any day now...) It's just I like a punny title and that's all I could come up with today. Bear with me, as today is the first day it doesn't feel like I've been punched in the … Continue reading Shingle all the way

Things & Stuff: July Edition

1. Health Status Report I had a breast MRI last week. Kaiser farms this work out to a 3rd party since they don't have the right set up (which is to lay face down with my boobs in separate holes, hanging). I forgot how LOUD NOISES MRI machines are, but it was painless and quick, … Continue reading Things & Stuff: July Edition