I mean, what?! I'm 5 points from normal range, people!!! In hilariously (to me) appropriate fashion, Dr. T didn't even deliver the news, his RN Betty did. That's my barometer for knowing how serious things are or are not. Betty is the bottom rung (sorry, Betty, but you are); then Patty; then the man himself. … Continue reading More quick news! CA-125 is 40!
Just got a call from my oncologist and my CA-125 is down to 57! That's 17 points away from normal range, and a far cry from where we started (1300). Commence happy dance. And hugs. Happy holidays, indeed.
It's appropriate that today is the day I can finally put pen to paper -- er, fingers to keyboard -- to share the news. My CA-125 continues to decline. We officially have the downward trend that my oncologist was waiting for. Unbeknownst to me, during the labwork before my 2nd round of chemo, he had … Continue reading Thankful
Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition
I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel
I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing
My recent blood work has shown a decline in my CA-125 test (nearly 50% down from the previous test). This means the treatment I'm on is working and I don't need to add anything else at this time. We'll test again in a month and go from there. *small optimistic happy dance* *but still not … Continue reading News: The Doxil is Working
My appointment with my oncologist was moved to Wednesday and I didn't tell anyone (except Kenji) and for that I'm low-key grateful. The appointment left me in unfamiliar territory, something I was not expecting, nor really prepared for. By the way, before I get on with it, can we just laugh for a moment about … Continue reading The gray area that I didn’t know existed
The below post was written the day I received some not-so-great news in early February. I've been sitting on this news, sharing only with a few and as the weeks have passed, sharing more in person with what's on the horizon, which essentially is a giant bag of shitty unknowns. I told myself I didn't … Continue reading The rollercoaster
Let's start with some administrative items: November's blood work & oncologist call occurred without incident. All blood marker levels are within in the normal range -- my CA-125 was slightly elevated, but my HE-4 was down a significant amount. (No, I cannot thank the diet for that yet since the tests were done about 4 … Continue reading Keto Life: Week 3 (and then some)