Usually, no news is good news around these parts. It means I'm living my life and things are chugging along. I wish I could say that has been the case. But as ever, chronic disease is chronic (it's in the name!) and so we've spent the past two months getting information, and then more information, … Continue reading What’s going on?
The latest results
Warning: Math ahead. Well, graphs based on math. We got the CA-125 results back today, and typically, I reach out to my nearest and dearest to give them the breakdown of what's going on first before posting here. But frankly, I'm tired and not in the mood, so everyone gets to find out together. Okay? … Continue reading The latest results
Certainty
Each time I get news about my treatment that isn't ideal, I find myself looking inward more. I know when I eventually share what's happening with all of you, I'll get nothing but resounding support. That knowledge has allowed me space to process my emotions in a way I never used to. * * * … Continue reading Certainty
Thoughts & Musings: February Edition
I know February is a short month, but honestly could this year go by any faster?! Things with my health continue to chug along. Recent CA-125 levels came back slightly elevated, so we'll have to see what my next one in a few weeks says before there's cause for concern. My oncologist is always pressing … Continue reading Thoughts & Musings: February Edition
More quick news! CA-125 is 40!
I mean, what?! I'm 5 points from normal range, people!!! In hilariously (to me) appropriate fashion, Dr. T didn't even deliver the news, his RN Betty did. That's my barometer for knowing how serious things are or are not. Betty is the bottom rung (sorry, Betty, but you are); then Patty; then the man himself. … Continue reading More quick news! CA-125 is 40!
Quick news! CA-125 is down
Just got a call from my oncologist and my CA-125 is down to 57! That's 17 points away from normal range, and a far cry from where we started (1300). Commence happy dance. And hugs. Happy holidays, indeed.
Thankful
It's appropriate that today is the day I can finally put pen to paper -- er, fingers to keyboard -- to share the news. My CA-125 continues to decline. We officially have the downward trend that my oncologist was waiting for. Unbeknownst to me, during the labwork before my 2nd round of chemo, he had … Continue reading Thankful
The Latest – October Edition
Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition
CT results & upcoming travel
I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel
The Not Knowing
I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing
All I can Do is Smile 