CT results & upcoming travel

I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel

The Not Knowing

I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing

The experiment continues…

...without keto. Wait, what? Yep. We are taking a hiatus from the ketogenic diet. While it may seem sudden to some of those reading this blog, especially with all my "woohoo keto rocks" posts, the decision has not come lightly. There are are so many different reasons, and the latest revelations with Dr. Ellis brought … Continue reading The experiment continues…

How keto is forcing me to do the hard work

I recently learned within my r/keto community that -- just like Fight Club -- the first rule of keto is you don't talk about keto. Except, I can't not talk about keto. It consumes me. Maybe this will get easier? But 8 months down the road, and it's still one giant experiment. I've noticed a … Continue reading How keto is forcing me to do the hard work

Keep calm and keto on. Plus other things.

There's this relationship tool called the "5 Love Languages" -- you can take a simple test to see what your love language is. I am overwhelmingly "Acts of Service" -- if you clean for me; you basically have my undying devotion. It's a fun way to understand how you show and want to receive love, … Continue reading Keep calm and keto on. Plus other things.

Treatment Status Report

In two weeks, I know one thing: I don't know shit. That right there, is the nutshell of the hardest part of all of this (at least for me): the unknown. And with that comes the brain that won't shut up. How bad will I feel? When will that feeling start? Oh shit, here it … Continue reading Treatment Status Report

Things that are on my mind

First, administrative: I am not starting treatment. Monitoring will continue and we will revisit treatment when/if the time comes. And that's all I have to say about that. In addition to the above, my brain has been full of the following: WWDRPD? (What Would Dr. Rhonda Patrick Do?) A full list of supplements she takes … Continue reading Things that are on my mind

The rollercoaster

The below post was written the day I received some not-so-great news in early February. I've been sitting on this news, sharing only with a few and as the weeks have passed, sharing more in person with what's on the horizon, which essentially is a giant bag of shitty unknowns. I told myself I didn't … Continue reading The rollercoaster

CT results, why Trader Joe’s is my life force, and the life-long lesson of letting things go

Isn't it remarkable how a simple test result can pivot your entire mood? I mean, certainly, waiting for a CT result is by no means simple, but hearing the words "no evidence of disease" changes, well, everything. I didn't realize how much anxiety I was carrying. I knew I was on edge, but it wasn't … Continue reading CT results, why Trader Joe’s is my life force, and the life-long lesson of letting things go