Let's just dig right in, shall we? The clinical trial is off and running and last week was the first in October I wasn't in Portland. I will be there next week and the week after, and then my schedule moves to an every-four-week-visit timing. This first month requires more travel because I'm getting 2 … Continue reading Clinical Trial Update
Okay, so now what?
There's a part of Brené Brown's The Gifts of Imperfection that discusses the idea of expectation. How if you tell yourself you have ZERO expectations for name-your-thing, that you're not actually protecting yourself from disappointment or that you don't care. Instead, you're denying yourself the joy of the thing happening or the support if the … Continue reading Okay, so now what?
Portland Bound + Other Things
Operation: Trial Engagement Begins I'm headed to Portland, Oregon next week to talk to a potential trial and determine my eligibility for said trial. This appears to be the lowest risk option with the highest reward. On paper, it looks like I'm good to go good, but they have to run their own tests to … Continue reading Portland Bound + Other Things
What’s going on?
Usually, no news is good news around these parts. It means I'm living my life and things are chugging along. I wish I could say that has been the case. But as ever, chronic disease is chronic (it's in the name!) and so we've spent the past two months getting information, and then more information, … Continue reading What’s going on?