Blog

The Latest – October Edition

Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition

Travelogue + Well, that was unpleasant, or my thoughts on Round 1 of the new regime

First, let's start with some good. Our trip to Europe was AMAZING (as if there was any doubt) and it was the perfect escape from reality for 2 solid weeks of eating, walking, sightseeing, and siesta-ing. Three days in Venice turned out to be just the right amount of time to see everything we wanted … Continue reading Travelogue + Well, that was unpleasant, or my thoughts on Round 1 of the new regime

CT results & upcoming travel

I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel

The Not Knowing

I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing

The experiment continues…

...without keto. Wait, what? Yep. We are taking a hiatus from the ketogenic diet. While it may seem sudden to some of those reading this blog, especially with all my "woohoo keto rocks" posts, the decision has not come lightly. There are are so many different reasons, and the latest revelations with Dr. Ellis brought … Continue reading The experiment continues…

News: The Doxil is Working

My recent blood work has shown a decline in my CA-125 test (nearly 50% down from the previous test). This means the treatment I'm on is working and I don't need to add anything else at this time. We'll test again in a month and go from there. *small optimistic happy dance* *but still not … Continue reading News: The Doxil is Working

How keto is forcing me to do the hard work

I recently learned within my r/keto community that -- just like Fight Club -- the first rule of keto is you don't talk about keto. Except, I can't not talk about keto. It consumes me. Maybe this will get easier? But 8 months down the road, and it's still one giant experiment. I've noticed a … Continue reading How keto is forcing me to do the hard work

Keep calm and keto on. Plus other things.

There's this relationship tool called the "5 Love Languages" -- you can take a simple test to see what your love language is. I am overwhelmingly "Acts of Service" -- if you clean for me; you basically have my undying devotion. It's a fun way to understand how you show and want to receive love, … Continue reading Keep calm and keto on. Plus other things.

Treatment Status Report

In two weeks, I know one thing: I don't know shit. That right there, is the nutshell of the hardest part of all of this (at least for me): the unknown. And with that comes the brain that won't shut up. How bad will I feel? When will that feeling start? Oh shit, here it … Continue reading Treatment Status Report