Chemo has been cancelled (yet again) and before I mentally check in to "workday mode," I find myself wanting to process what I'm feeling aloud. Welcome to my brain. I am frustrated and disappointed. I am tumbling toward the realization that this will probably be true every time this happens. Willing my blood counts to … Continue reading An open mind
Apparently, photos or it didn't happen. Here's the newest edition to our family. We're obsessed. You can follow her on instagram @peanutsblop.
In three words, I can sum up everything I’ve learned about life. It goes on. - Robert Frost I've probably used that quote in a previous post, but it continues to be the truth, so I'm going to continue to use it. (sidenote: Robert Frost said this during his eightieth birthday celebration according to journalist … Continue reading Same Same
I mean, what?! I'm 5 points from normal range, people!!! In hilariously (to me) appropriate fashion, Dr. T didn't even deliver the news, his RN Betty did. That's my barometer for knowing how serious things are or are not. Betty is the bottom rung (sorry, Betty, but you are); then Patty; then the man himself. … Continue reading More quick news! CA-125 is 40!
Just got a call from my oncologist and my CA-125 is down to 57! That's 17 points away from normal range, and a far cry from where we started (1300). Commence happy dance. And hugs. Happy holidays, indeed.
Much of why I started this thing three years (!!!) ago was to react. I was constantly reacting to information, updated news, lab tests, surgeries, hospital stays, and therapies. You know, basically freaking the fuck out about everything in my life being turned upside down. I've spent most of my life living in a reactive … Continue reading Intention
It's appropriate that today is the day I can finally put pen to paper -- er, fingers to keyboard -- to share the news. My CA-125 continues to decline. We officially have the downward trend that my oncologist was waiting for. Unbeknownst to me, during the labwork before my 2nd round of chemo, he had … Continue reading Thankful
Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition
First, let's start with some good. Our trip to Europe was AMAZING (as if there was any doubt) and it was the perfect escape from reality for 2 solid weeks of eating, walking, sightseeing, and siesta-ing. Three days in Venice turned out to be just the right amount of time to see everything we wanted … Continue reading Travelogue + Well, that was unpleasant, or my thoughts on Round 1 of the new regime
I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel