I mean, what?! I'm 5 points from normal range, people!!! In hilariously (to me) appropriate fashion, Dr. T didn't even deliver the news, his RN Betty did. That's my barometer for knowing how serious things are or are not. Betty is the bottom rung (sorry, Betty, but you are); then Patty; then the man himself. … Continue reading More quick news! CA-125 is 40!
Much of why I started this thing three years (!!!) ago was to react. I was constantly reacting to information, updated news, lab tests, surgeries, hospital stays, and therapies. You know, basically freaking the fuck out about everything in my life being turned upside down. I've spent most of my life living in a reactive … Continue reading Intention
Yesterday's chemo was cancelled because my white blood cell count was too low. Yet another thing to add to the list of inconveniences caused by the addition of this new drug. However, it appears to be worth it because my CA-125 has dropped significantly! I'm down from 1348 to 160. (Friendly reminder that a normal … Continue reading The Latest – October Edition
I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel
There's this relationship tool called the "5 Love Languages" -- you can take a simple test to see what your love language is. I am overwhelmingly "Acts of Service" -- if you clean for me; you basically have my undying devotion. It's a fun way to understand how you show and want to receive love, … Continue reading Keep calm and keto on. Plus other things.
In two weeks, I know one thing: I don't know shit. That right there, is the nutshell of the hardest part of all of this (at least for me): the unknown. And with that comes the brain that won't shut up. How bad will I feel? When will that feeling start? Oh shit, here it … Continue reading Treatment Status Report
My appointment with my oncologist was moved to Wednesday and I didn't tell anyone (except Kenji) and for that I'm low-key grateful. The appointment left me in unfamiliar territory, something I was not expecting, nor really prepared for. By the way, before I get on with it, can we just laugh for a moment about … Continue reading The gray area that I didn’t know existed
First off, I cannot believe it's nearly October. Time, she is flying! Kenji and I had a discussion recently around perception of time and how it changes as we age. We figured out that a 50 year-old's perception of a single day is just over a week to a 1-year-old. Put *that* in your pipe … Continue reading Things & Stuff: September Edition with Added Science!
I'm feeling better and better (wtf?) each round. Or rather, I'm getting used to what each round means for me. I recall last time I went through chemo telling Kenji I was finally getting the hang of everything the 5th round. Out of 6 rounds. So not helpful. The fact that I've found a sort … Continue reading Status Report: 50% complete with chemotherapy.
Yesterday, I busted out the blue wig. I got far less looks that when I go au naturale, but that could be because I was shopping at Japanese stores. Most people didn't give me a second glance. One woman asked if it was my real hair. Yes, this is really my hair. In any case, … Continue reading Social Experiment