I learned on Tuesday that the CT showed disease activity. The nurse wouldn't (couldn't) tell me more so I had to wait until a Friday afternoon phone call to find out just exactly what was going on. The long and short of it is this: the Doxil isn't working on its own. My CA-125 is … Continue reading CT results & upcoming travel
The Not Knowing
I'm back in the unknown again. My CA-125 is rising and Dr. T ordered a stat CT last week. I don't have results yet. My 5th round of Doxil is on Tuesday. It's not surprising at this point. Remember, chronic illness. And it's not that it gets easier to hear that things aren't working. It's … Continue reading The Not Knowing
The experiment continues…
...without keto. Wait, what? Yep. We are taking a hiatus from the ketogenic diet. While it may seem sudden to some of those reading this blog, especially with all my "woohoo keto rocks" posts, the decision has not come lightly. There are are so many different reasons, and the latest revelations with Dr. Ellis brought … Continue reading The experiment continues…
News: The Doxil is Working
My recent blood work has shown a decline in my CA-125 test (nearly 50% down from the previous test). This means the treatment I'm on is working and I don't need to add anything else at this time. We'll test again in a month and go from there. *small optimistic happy dance* *but still not … Continue reading News: The Doxil is Working
How keto is forcing me to do the hard work
I recently learned within my r/keto community that -- just like Fight Club -- the first rule of keto is you don't talk about keto. Except, I can't not talk about keto. It consumes me. Maybe this will get easier? But 8 months down the road, and it's still one giant experiment. I've noticed a … Continue reading How keto is forcing me to do the hard work
Keep calm and keto on. Plus other things.
There's this relationship tool called the "5 Love Languages" -- you can take a simple test to see what your love language is. I am overwhelmingly "Acts of Service" -- if you clean for me; you basically have my undying devotion. It's a fun way to understand how you show and want to receive love, … Continue reading Keep calm and keto on. Plus other things.
What a difference a year makes
Treatment Status Report
In two weeks, I know one thing: I don't know shit. That right there, is the nutshell of the hardest part of all of this (at least for me): the unknown. And with that comes the brain that won't shut up. How bad will I feel? When will that feeling start? Oh shit, here it … Continue reading Treatment Status Report
Game on
TL;DR version: I'm starting treatment again. Yippee! (/sarcasm) I had a PET scan in the early part of May. The results showed mild uptake yet again (this is a good thing, no tumor activity) but with more sites of uptake (this is not a good thing, #becausemore). Given this information and my high CA-125 marker … Continue reading Game on
All I can Do is Smile 