Fair warning, this is a long post.
To say the fourth round of my chemotherapy was difficult would be a vast understatement. The word “compounding” took on new meaning, as the chemotherapy side effects legitimately were getting worse. More fatigue, more nausea, more suck.
My first week brought such intense nausea I had to increase the dosage of my medical marijuana 2 fold in addition to staying on top of the anti-nausea medications. Even that didn’t relieve everything in the way it used to.
Leading into my 2nd infusion, I started getting fevers a couple days before. As discussed with my oncologist, I tried to manage the fever with Tylenol. I was able to get the fever down each day, but come morning, a 103 degree temp greeted me. The infusion center still gave me my chemo, and I went home and promptly fell asleep and woke up feeling like utter shit. UGH.
Saturday, May 27th we had tickets to see Jake Shimabukaro (seriously, click the link and be blown away). Though I wasn’t feeling super, we made it happen. And then there was the encore. And the 2nd encore. Never have I wanted less for more music. When the 2nd encore began, I wanted to cry.
On our way home, I knew my fever was back. But I was resistant toward going to the emergency room. A text to my friend and former oncologist, Katharine Tierney, confirmed I needed to go in.
We went home first. I ate something, took my evening medications, and we packed a bag knowing we would likely be admitted. The ER was popping on Saturday night at 11pm, so I had to sit and wait with a mask on. I was half tempted to ask people what they were in there for so I knew who to avoid sitting near. Not exactly appropriate.
Eventually, we got into a room at the ER and they sent me up to the hospital for longer term observation. This does not count as being “admitted” but “observed” (Kaiser considers this to be different, and lucky for us, observed is a flat rate, no matter how long we stay).
And so here I sit, still in the hospital, likely through early next week. My fevers kept spiking each day (105! New record!) and would not go away. My platelet count was all over the board, but super low; red blood cells low; white blood cells low. I actually can’t leave my room for fear of infection. When I’m up walking, I’m confined to the room dimensions, and basically look like a crazy person who doesn’t know where they’re going or what they are doing.
They’ve got me on two different antibiotics; I’ve been getting platelet and blood transfusions. And we’re just waiting for the fevers to go away.
Here’s to hoping…