Whew. And I thought all previous doctor visits were information overload. They pale in comparison to today’s meeting with my doc. I took about 6 pages of notes (on a small note pad, but still). I’ll try to break it down in a consumable manner.
Prior To Surgery
- More blood work! Check.
- Post-opp pain med pick up. Check. The doc allowed me to pick them up now so I don’t have to worry about waiting for them once I’m released from hospital.
- 24 hours before, I’m on a clear food/liquids diet. Thankfully, coffee is included in the list of what’s allowed. Meals of broth, jello and juice await me Sunday.
- 4:00pm on Sunday, I take a dose of Magnesium Citrate. I got lemon flavored. It’s an effervescent laxative. As the nurse said, “get comfortable because you won’t be leaving your house…”
The Surgery
- I’m the first case of the day! This means the hanger won’t have completely taken over.
- Arrival at 5:30am
- Surgery at 7:30am, surgery will last 3-4 hours
- They will cut from the base of my sternum to the top of my pelvic bone. They will close it with staples. That’s going to be a wicked awesome scar.
- They will start by removing the mass, and while they wait on the pathology results will move onto the liver and the lymph nodes.
- The other surgeon working on me is Dr. Krishnansu Tewari
- The liver specialist who is consulting is Dr. Julio Vaquerano
Possible Outcomes
Here’s the various outcomes listed from good to not-so-good:
- No cancer. There’s still a small chance it could be benign and the liver and lymph nodes have nothing wrong with them. Here’s to hoping!
- Definitely borderline. Nobody dies from this kind of tumor. There’s a 8-12% chance of recurrence in the other ovary, but the doctor’s recommendation is to preserve fertility if the other ovary looks normal. We’ve agreed this is reasonable and will take her advice if this is what we’re facing.
- At least borderline. This means they’re not quite sure and that it could still be malignant. The mass is pretty massive (pun intended) so it’s possible we won’t get definitive results. If they’re even remotely unsure, everything comes out. A port will be installed in my abdomen for chemotherapy, which may or may not be needed. (But, it’s easier to remove than to go back into another surgery.)
- Malignant. Speaks for itself. Everything comes out, including the fat pad, lymph nodes, and the appendix (4 for the price of 1). Port installed, IP chemo will begin 4 weeks after surgery.
The Risks
- New things for me to worry about. Ugh. There’s a lot unknown until they get in there. If there’s anything on my bowel or bladder, I’ve given consent to take what they need to make sure any cancerous anything is gone. This could mean removal of sections of my intestines and bladder, which could mean a temporary or even permanent colostomy/urostomy. Um, fuck that.
- Bleeding is a risk because the liver is involved. They’ve typed my blood (O+) and a blood transfusion may be necessary. My chance of getting HIV/Hep C is 1 in 2 million.
- Infection is a risk. They are putting antibiotics in my IV prior to surgery. If any surgery is required on my bowels, I will also get antibiotics after surgery. (Please, please, PLEASE, let there be nothing wrong with my bowels.)
- Bladder infection is a potential risk as well. I’ll have a catheter in place for 1-2 days.
Post-Op Stuff
- I will be monitored in ICU for 1 night and then I’ll be transferred to a regular room after that. I should anticipate being in hospital for 4 days total. Merry Christmas to me! (Again, if you want to visit me at hospital, coordinate with Kenji.)
- I’ll be on a dilaudid pump until I start eating. They may switch me to pills if I get really nauseous.
- The staples will be removed approximately 2 weeks after surgery.
- I will have a post-op meeting with my doc the first week after surgery, and probably every week thereafter until the end of my recovery (6 weeks).
- My doc stands firm that it will take 6 weeks for recovery, where I’ll be 80% and it will be 3 months until I’m completely normal. I am not allowed to work those 6 weeks (we’ll see about that…).
At Home Care
- No lifting ANYTHING. (10lbs is the limit)
- I can shower!!! THANK GOODNESS. I will not be allowed to shower at the hospital, so this is glorious news. No soaking allowed. I have to make sure the wound is super dry (doc even suggested using a hair dryer on cold to ensure absolute dryness) and I have to use a new towel every time.
- No dietary restrictions, just have to go slowly.
- Physical activity is allowed in moderation. Nothing that involves the core, but walking around is allowed, and encouraged. So those visiting can expect to take long, romantic strolls with me to the park.
- No driving allowed the first week (this is because I’ll be on a lot of pain meds).
- I should anticipate lots of fatigue and I should listen to my body.
Other Cool Stuff
- They will totally take a photo of the mass they remove so I can see it! I know, I know… super weird. But I’m strangely excited to see what it looks like.
- My doc gave me her cell phone number should I want to reach her this weekend or during the first week of my recovery. THIS IS HUGE. They don’t do that usually. Have I mentioned how much I like my doctor?
- Chewing gum has been medically proven to aid in passing gas. (Apparently, gas pain is something I’ll have to contend with the first couple of weeks.)
That’s the run-down. Feel free to comment with questions. Kenji will be live-blogging on Monday so everyone can hear as soon as possible how it’s gone.
Geebus. That’s so much information to take in. We’ll probably visit you while you’re in hospital recovery – we’re totally still keeping our fingers crossed for option 1 in your possible outcomes list so we can super celebrate when we see you. Either way, we’ll celebrate when we see you because you’re going to kick so much ass. Also, after my dad has his emergency open heart surgery, if he met other people with the same “zipper” scar, they would totally open up their shirts and show each other (it spans his ribcage but has become less noticeable in the last 10 years) so I expect that you will be showing off your battle wounds too.
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Thanks D!
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The Landrum’s vote for door #1! (Isn’t that how it works?)
Next, can we donate blood in your name?
1. It’s a wonderful thing to do.
2. I remember donating blood for my grandfathers surgery years ago.
3. It makes me feel like we can at least do something!
Ok, so when I thought of that idea I quickly searched for my Life Stream card on my extremely messy desk to find out what blood type O (+/-, can’t remember and it doesn’t matter) only to come up with no card. Bonus my desk is less messy, but not clean.
Back to you. Best of luck the next few days leading up to surgery. You’re totally gonna kick this in the junk!
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Not sure about the blood donation. I know I’m not able to donate for myself. You’re more than welcome to look into it! I know feeling helpless sucks. Thanks for the kind words. Junk shall be kicked!
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I’ll see what I can find out and spread the word!
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Finally read through the rest of the paperwork and designated donors require 5-10 working days notice for processing.
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We’re crossing our fingers for no cancer! Love you 🙂
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Thanks! Freeland!!!!
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Thanks buddy!
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Sounds like you are in good hands, glad to see they are so thorough in explaining everything to you. Love and hugs.
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Best care I could hope for. 🙂
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So glad pre-op went well. I was thinking about you today! I love how amazing you’re doctor has been. You totally are in good hands.
I remember those scrub pads….they’re interesting.
Don’t forget the baby wipes…during Patrick’s colonoscopy prep, he was glad he had them!!
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Thanks for the suggestion! I will definitely bring those. And yes, totally have great care! I’m still reeling from the fact she gave me her cell!
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We’re rooting for you, Jess! Much love.
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Thanks Rhonal! Xo
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Praying and hoping for Possible Outcome #1. God bless and protect you. Your east coast cousins love you and are praying for you!!!
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Thank you! ❤
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